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by MJ Blume » Fri Jul 15, 2011 6:14 am
Hi, my name is MaryJo, I normally go by my initials, though. I'm new here as of today, Thursday, 14July 2011. I exist (semi) down here in Olympia, WA and am wondering if there are any group members in this area. Also wondering about meet and greet meetings, are there any of those presently going on? One last question, please. I've been reading posts, searching for a glossary of some sort which will explain and help me get the different "terms" having to do with descriptions of illnesses and conditions. Is there anything resembling this to help us newbies to understand how to correctly post and also describe our Loved Ones conditions?
Thanking you for any answers which might aid me in better understanding how to navigate these new waters I find myself furiously peddling in. MJ
Gary is my *IS* and *MVBF* of 47 years. His condition, which brings me here is, Lewy Bodies Dementia *LBD*
While I'm sad you've need of this place, I'm glad you found our little online oasis. May you receive the kindness, support, and friendship you seek here.
My geographic location limits my ability to answer some of your queries, but as far as posting and knowing what to say, you're doing a fine job. Relax! We were all newbies here once, and are happy to answer any specific questions you might have.
We encourage folks to talk about what they are dealing with as Well Spouses in the form of an introductory thread; the most commonly read threads are under the topic "Help and Healing". If you are seeking advice about how to create your 'signature line', you can do that in User Control Panel, on the Profile tab, on Edit Signature.
As far as the "language" we speak (from a medical standpoint) check out this link for commonly used abbreviations:
In our lives, a lot comes our way faster than we can process. Consider this a place where you will have time....and support....to process as much as you can. And, provide a break from 'peddling'.
Again, welcome. I look forward to seeing more of you.
IS disabled with chronic intractable pain from several inoperable, degenerative spine issues resulting from fall in '96, fibromyalgia, obstructive/central sleep apnea, chronic lymphocytic leukemia. Seeking serenity with no drama and no trauma.
Welcome MJ to our little family. I am sorry that you need to be here.
I think the glossary that you need is this one
http://www.wellspouse.org/forum/index.p ... =viewtopic
I am in the NW but not close enough to help with the support group thing. We don't have one down here in the Portland/Vancouver area.
Here are some hugs for you (((((MJ)))))
FIS with inoperable lung cancer in remission over 7 years, COPD, on oxygen 24/7--14 years, 2 kinds of sleep apnea, spinal fusion--His struggle ended 10/21/2011
Hi and welcome to the group!
I'm your neighbor one state to the east
Becky- WS: 35, multiple autoimmune issues, incl. hypothyroidism & gluten intolerance IS: 37, born w/ Spastic CP- legally blind & uses wheelchair; C7 vertebrae fused Aug 2007, cont'd back problems; Married since June 1998.
WS - 50, IS - 54 Breast Cancer, MRSA, Cardiac Arrest with Anoxic Brain Injury, Cerebral Hemorrhage with Brain Stem bleed. 2 beautiful kids aged 17 and 13 who keep me going day after day!
Welcome to the family, MJ! Sorry you need to be here, but so happy you have found us. ((((((((MJ)))))))) (that's hugs)
WS (59) to IS (67) Separated. Parapelegic from injuries suffered in Viet Nam in 1967. PTSD, Chronic pain... too many surgeries to mention.
Welcome MJ - this is a great group. I'm sorry you need it but glad you found it.
"there's a crack in everything, it's how the light gets in" (Leonard Cohen)
WS 53 to IS 46 Dx June 2009 adenocarcinoma of unknown primary metastasized to liver. Peacefully departed March 3, 2011.
MJ: Welcome. This is a great family with all sorts of support. Caring abounds.
FIS died 9/1/08. It was her CHF, COPD, and Atrial Fibrulation that hospitalized her the last time. Both WS and FIS are women who retired in 1997 and had lived together almost 19 years.
WS(44), caregiver for 18 years, IS (48) Chronic Progressive MS. I, an only child, and have a dad with lung, prostate, and bone cancer; and my mom has early stages of dementia and in February broke her cheek, jaw and back falling out of bed.
I am 44, husband is 70 massive stroke 3/2009. Together 22 years. First year after stroke I was superwoman. 2nd year was falling apart. Separated May 2011 - living as friends only with separate relationships now.
10 posts • Page 1 of 1
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