How to use this board

by **Nora** » Sun Mar 26, 2006 10:57 pm

I agree Dorie. This site is a God send that's for sure. So many wonderful folks and lots of support to boot! :-)

by **terraplane** » Wed Apr 19, 2006 3:46 pm

I'm glad to find this site - I've been reading it for the last couple of days, and just signed on.

My partner's been in a wheelchair for the last 2 weeks, either because of a brain tumor (one stupid tumor) or the several radiation treatments she's had for the tumor. We're still in the frantic stage of getting things in place (ramp, the right chair, some way to do transfers that doesn't risk an EMT visit, etc), and I will post more questions to "resources" once I know this works....

by **jchan** » Sat Apr 22, 2006 5:47 pm

i want to post

by **reallysara** » Sat May 20, 2006 5:50 pm

Hello,
I've been following some of the threads for a while so I guess I'm ready to jump in. My IS has ppMS is basically a quad. My chosen career is working with preschool special ed kids. You can imagine how tired I am at the end of the day. We have one daughter 20 y-o who is just beginning to try life out out of the critical eye of her dad. So I often feel very alone.
Life goes on. thanks for being here.

by **Dorothy Saunders** » Sat May 20, 2006 11:15 pm

Welcome, reallysara. You must live in my backyard!! My zip is 22032 and I run the northern Virginia support group. I hope you'll join us at our next meeting -- we meet the 3rd Monday of every month in the evening, and get together for lunch on the first Sat. of the month. Many of the regulars are dealing with MS.

by **rebel** » Fri May 26, 2006 9:41 pm

Hello, I have just recently discovered this site and it is just what I need right now.. Have been a full-time caregiver for 2 years, and look forward to seeing how others deal with their 'life-altering change'. I thought I was handling mine well, but now realize my own health needs attention.

by **Nora** » Sat May 27, 2006 8:34 am

Welcome Judy. Life of a caregiver is never easy. Much less if the caregiver also works outside the home. It's true our health and well being is as important as the ppl we are caring for.

by **Katt** » Sat May 27, 2006 10:08 am

Welcome Judy. I think you hit the nail on the head. WS's must take time for their own health. I am just doing that after 8 years of caregiving. So glad that you realized that sooner.

Kat

by **Solstice** » Tue May 30, 2006 10:14 pm

Just trying out the water for the first time.

Solstice

by **TLK** » Tue May 30, 2006 10:28 pm

Welcome aboard to this forum.

TLK

by **millahh** » Wed Jun 14, 2006 1:48 pm

testing...

I found this site from a post at butyoudontlooksick.org, which i in turn found from arthritis.org. This site is what I've been looking for, but hadn't been able to find.

Married 1 year. Wife is a very hard-headed 26-yr old severe RA sufferer.

by **Katt** » Wed Jun 14, 2006 4:15 pm

Dear Millahh,

So sorry that you have a need for this site, but welcome. I haven't been here very long, but have gotten more support than I have in years.

Kat

by **Nora** » Wed Jun 14, 2006 9:42 pm

welcome millahh, sorry you need to be here but just know everyone here is very friendly and can be very helpful.

by **sotiredofthis** » Wed Jun 28, 2006 4:31 am

I am new to this site , and I am so glad that we get this chance to experiment posting messages

, .Well to be honest I have tried to email a person and I was unable to , but I am never too old to learn: as the saying goes, right ???? :shock:

Oh , by the way my name is michelle and I am new and really need this site for support :things are terrible right now .We are loosing our home of 37 yrs . And if that isn"t enough my husband got a phone call from his disability insurance here in Canada and we have to repay $34.5000 yes thousand . why couldn"t they have told us sooner if there was an error . We are in total shock :shock:

well apparently to the best, I can understand things , he wasn"t making enough money when he applied for his disability! and it was an integrating policy he had,had for ever with the same company we have our morgage with. You know as sad as I am AND as angry /this is one more kick in the teeth . My husband has ms and was doing ok and thinking ok, I am going to retire , well now that his disability has been taken away and we have no income , "WELL WE are in dire straights " :shock:

I hate to think of what the stress is going to do to him . but he is starting to get that sick look Please pray for us I am absolutely terrified to death :cry:

It is like this isn"t really happening / but it is :shock:

by **Katt** » Wed Jun 28, 2006 8:55 am

All of the suden any problems that I may have seem very insignificant. I logged on to vent, but there is nothing important to vent about.

Sotiredofthis, my heart goes out to you. I have no answers, only questions on how this can happen in this modern world.

Kat

How to use this board

anoher newbie

gibberish

trying my first post

My First Stop

Solstice

just testing the system but had to type I , hope it is ok /

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