New here...hello!
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New here...hello!
My IS is suffering from a neurodegenerative disorder and has been declining for over three years now. I visit boards often to gain insight but this is my first post. Hello from KC!
IS, 47, in assisted care. Has an unknown neurodegenerative disorder, is paraplegic and has cognitive problems.
WS, 44, now separated. Works full-time, finishing grad school, raising two teenagers and making an attempt to find her way in a new life.
Re: New here...hello!
Welcome to our special community, mom2two! I am glad you found us.
I joined WS just about one year ago. At the beginning I browsed finding quite a bit of help just by reading the posts of others. However, since I began actively participating I feel like I am encircled by remarkable, caring friends and it makes an enormous difference in how I am able to face the challenges of being a WS. I hope to see you often, everybody cares and understands. A welcoming hug, Claudia WS 70,IS 74, PPMS 25+ years.
Re: New here...hello!
Welcome, Mom2two!
You've got a lot on your plate; I think chatting with us will be helpful to you. We're here for you. Caregiver for 30+ years to C-4 quadriplegic shot during a robbery at age 21. He practices law full time; we have two 20-something sons.
Re: New here...hello!
Welcome! You will find so much understanding, encouragement and information here. It seems that everyone listens when we rant and shares in small accomplishments. Its a great place.
South AR FWS/IS passed in his sleep May 4, 2011
Re: New here...hello!
Glad you found our safe and supportive "family". I know you'll get lots of info and support here.
Be thankful the thornbushes have roses!
Deb and Larry 4-16-67 1-22-13 President Well Spouse Association - BECOME A SUPPORTING MEMBER so that we can serve others in need
Re: New here...hello!
Welcome, welcome. Sorry you need us, but happy to have you! This place is a lifesaver, a huge sigh of relief.
35,CG 7 yrs/WS 4 yr/full time job. IS-41,born w/S.B.(Meningomylocele),hydrocephalus,paraplegic,RA,scoliosis,urostomy. Trying to keep myself together without turning into granite to accomplish it.
Re: New here...hello!
Welcome!
I'm so sorry you need to join us but I'm glad you found us.... Stick around and visit for a spell.... (((((Mom2Two))))) Jan
Re: New here...hello!
Hi Mom2Two!! Welcome to the family!! Hope to hear from you often!
WS (59) to IS (67) Separated. Parapelegic from injuries suffered in Viet Nam in 1967. PTSD, Chronic pain... too many surgeries to mention.
Re: New here...hello!
Mom2Two,
Welcome to WSA. I can only hope that you find the support and friendship that I have found here. You certainly have your hands full, but don't forget to take the time for YOU. Again welcome and come often and stay late. Kat Married for 42 years. Caregiver for 13 yrs. IS died of COPD Feb. 10, 2011. Combat related disabled veteran.
Re: New here...hello!
Thanks for the welcome. It has been a rough three years, going from one diagnosis to another, and now to "unknown" again. It has been so frustrating just on the medical front constantly fighting for IS's needs. In the meantime, our whole family life has changed -- we've had to move, file bankruptcy, along with a host of other problems. Just the paperwork alone is mind-boggling. It's amazing, actually, that I have any sanity left.
But, I think the hardest part of all this is watching IS struggle. He was such a hard-working, intelligent professional that is now needing a lot of assistance and is beginning to have memory/cognitive issues. It is breaking my heart. I tried to have hope for so long that this could be fixed but I need to face reality -- whatever he has, it is not going away. Even with all the day-to-day difficulty of caring for my IS, I still try to focus on blessings -- my family is still together, we are recovering financially, we have the support of an amazing church family and good friends in our community. There's a lot to be thankful for. I'll just take it one day at a time... IS, 47, in assisted care. Has an unknown neurodegenerative disorder, is paraplegic and has cognitive problems.
WS, 44, now separated. Works full-time, finishing grad school, raising two teenagers and making an attempt to find her way in a new life.
Re: New here...hello!
(((Mom2Two)))
Welcome to the forum. You've been through so very much over the past three years...I hope the support and companionship so generously offered here will help brighten the weeks and months ahead. LaLuLu FWS, 53. IS died on Jan. 13, 2010, at 54, from end stage liver disease. Blogging about my journey at http://fullcircletolove.com.
Re: New here...hello!
Welcome! You find many caring, compassionate people to help support you on this journey!
Frogwife FWS 44 yrs, FIS 57 yrs Dx w/ Dermatomyositis 4/09, severe Dysphagia and feeding tube 5/09, SVT & cardiac ablation 5/09, pnuematosis 9/09 and passed away 11/9/09, 92 yr old FIL in assisted living nearby, Shadow Kitty, & Taffy Bird
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