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Yup, you're both "here" ---both got it to work.
Welcome to "the club no one wants to qualify for"...
Thanks for getting me up and running. I'm not very computer capable.
I am 40. My husband is a 48 y/o C-4 quad injured at age 20. We have no children of our own, but are legal guardians of a 4 y/o since Aug/04. We are the caregivers for my 89 y/o grandma with lung cancer since Dec/04.
First marriage for both of us.
It's such a treat to find a site where I can see everyone freely talking about those things that are front and center on my mind but rarely make it out of my mouth. You know, those things you think every day but are afraid if you voiced them out loud everyone would think "What has she got to complain about? Her husband is the one with the Parkinson's. " Actually I have wonderful friends but after awhile we all worry about wearing out our friends' store of empathy.
Thanks for being there.
Husband with Parkinson's now 54, diagnosed 5 years ago. Son 15 and two labrador retrievers that help keep me going.
Welcome to the club no one wants to join. Your feelings are normal, of not being understood by friends, however kind, who don't have to live with the "elephant in the living room" that chronic illness/disability can be. It can be very isolating and depressing for the caregiving "well" spouse, and while there is very little or no official support available, and often little or no support from the family, the WSA can be a great help as a source of peer support.
Richard, WSA Pres. 05-09. Mantra: WIT - Whatever It Takes! FWS1:died 2004-IS scleroderma,cancer. FWS2: Divorced 2010-IS mild stroke'07,anxiety. Married July 2012 to a wonderful woman. BLOG: http://www.carepages.com/blogs/lifeofwellspouse/posts
I must say this again, as I am new, but have posted already. This place is like a home away from home. I am glad there is someplace for someone in these types of situations to come and just 'vent' with no repercussions of any type. Being the caregiver is a job that should be up for sainthood.
Anyone who is just 'lurking', please, do not be afraid. Welcome and come get your hugs.
59 Y/O hubby is undiagnosed but in lots of pain.
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