Hero Caregiver

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Hero Caregiver

Postby Getting Better Every Day » Tue Oct 30, 2012 4:21 pm

Newbie here. I have been taking care of my husband since he had his first stroke in 2005. He has hemiplegia and is somewhat independent. As we find our new normal he wants his wife back and I find myself wondering if I can get back there.
WS/IS 54 (30 yrs together). Husband had first stroke 2005; second stroke six months later. Hemiplegia and frustrated.
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Re: Hero Caregiver

Postby zephyrdeb » Tue Oct 30, 2012 4:34 pm

Welcome !!
My IS (ill spouse) also had a stroke in 2005...
Glad you found WellSpouse... it saved my life !
Deb
WS 57/IS 65 IS=Severe heart disease,scooter bound, stroke w/L neglect,severe diabetes,colostomy,COPD, mostly home-bound,sleeps alot,in pain.I don't post often,but garner strength from reading your posts-it helps me hang on and hang in there!Thanks to all.
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Re: Hero Caregiver

Postby secretflower » Tue Oct 30, 2012 5:14 pm

Welcome Hero Caregiver (perfect name)....I also have a spouse who suffered a stroke, hemiplegia (massive losses, sadly).....this is a wonderful safe haven to garner information, support, vent, share, cry or laugh.....as they say, "Sorry you need us, but glad you found us".
IS-a massive stroke-6/07-hemiplegia rt.side, aphasia, diabetes, etc.-5 yrs.24/7 home care-now my darling is in NH...
Cheerio,Secretflower ~/>
Life is mainly froth & bubble-2 things stand as stone-kindness in another's trouble-courage in your own
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Re: Hero Caregiver

Postby LarryB » Tue Oct 30, 2012 5:59 pm

This is a wonderful place to obtain insight as to how everyone else handles thie travail. Welcome to our family. It is not easy to go back and forth between nurse and spouse and however you handle it will be right for you.

It is hard for me to always remember the "wife" I have loved for 45 years even though she too is able to do most ADLs. It is the roller coaster and emotional drain.

Hope to hear more from you soon.
Be thankful the thornbushes have roses!

Deb and Larry 4-16-67 1-22-13

President Well Spouse Association - BECOME A SUPPORTING MEMBER so that we can serve others in need
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Re: Hero Caregiver

Postby Cheryl » Tue Oct 30, 2012 7:16 pm

Hi (((Getting Better Every Day)))

My IS had a major stroke in 2009 at the age of 55. He also has left hemiplegia and other damage. He can still do a few adl's but less all the time. He's reached the point that he sleeps about 20 out of each 24 hours. A sleep study last week revealed he has obstructive and central sleep apnea. Waiting for the neurologist to tell us what to do about it. We've been married 31 years now. He's not the same guy he was. With the depression, fatigue and cognitive losses, he's not even the same guy from day to day. I never really know if or whom I'll run into- some days he doesn't really get up. The new normal is crap. I've been left behind with this new version of my husband.

Many days I just wish I were anywhere but here.
We must let go of the life we have planned, so as to accept the one that is waiting for us. Joseph Campbell
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Re: Hero Caregiver

Postby SunshineH » Wed Oct 31, 2012 12:14 am

Welcome Hero Caregiver!!! (((hugs)))
FIS died 9/1/08. It was her CHF, COPD, and Atrial Fibrulation that hospitalized her the last time. Both WS and FIS are women who retired in 1997 and had lived together almost 19 years.
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Re: Hero Caregiver

Postby 4strnkth » Wed Oct 31, 2012 11:29 am

We can always use another Hero...welcome!!!
IS died 1/2/13, my 48th Bday! Best bday present ever; he is now free of pain! So happy for him but miss him so much!
C6 Quad/24yrs,cord pain. Cause of death 'septic shock'from pseudomonas,and/or colitis.

CLEAR HEAD, FULL HEART, CAN'T LOSE!
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