Test out the forum before you post!
 by asites » Mon Apr 08, 2013 9:08 am
Thank you  I will post my story when I figure out what it is, ironically I never thought about it until yesterday, I feel like I have been putting out fires for three years with no break. No time to think about things except how to put out the next fire! LOL! Raising Five kids (only two left at home! YAY!), father passed in May 2012, being an only child made that rather difficult My Mama needed me...as much as I could spare. Wow, I am not sure I want to think about it all! I do know this, reading all the posts on this site has helped me. I don't feel so alone or crazy..ok, crazy I have always been, so maybe I mean stressed? Life is what we make it? Right? Peace and Love Massive stroke, May 2010; GM Seizures, March 2012; Congestive heart failure, Jan 2013; ICD placed. He is just 47.
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asites
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by LarryB » Mon Apr 08, 2013 9:15 am
Wow-your signature says a lot, especially with kids at home and at a young age.
Sorry about Dad - we are never ready for that.
I am glad you are now looking for some balance in your life. We need each other.
L
Be thankful the thornbushes have roses!
Deb and Larry 4-16-67 1-22-13
President Well Spouse Association - BECOME A SUPPORTING MEMBER so that we can serve others in need
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LarryB
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by secretflower » Mon Apr 08, 2013 9:26 am
Welcome (((((((asites))))).....I am glad you found us....it took me three years....so busy putting out the fires of life, like you....it was the day after the 3rd anniversary of my darling husbands massive stroke, I was feeling so lost and lonely....I will never forget how warmly I was received....
I am sure you will find it a safe haven for you to rest when you have to and share when you need to....the healing that comes from the true understanding of caregiving our IS's (illspouse)from this group is immeasurable
IS-a massive stroke-6/07-hemiplegia rt.side, aphasia, diabetes, etc.-5 yrs.24/7 home care-now my darling is in NH...
Cheerio,Secretflower ~/>
Life is mainly froth & bubble-2 things stand as stone-kindness in another's trouble-courage in your own
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secretflower
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by SunshineH » Wed Apr 10, 2013 12:17 am
Welcome (((((((asites)))))
You said you need to figure out your story. In your last post you told enough about yourself for anyone to respond. Later you can add more. If you wish to post just repeat that last one in Health and Healing to get the most exposure.
FIS died 9/1/08. It was her CHF, COPD, and Atrial Fibrulation that hospitalized her the last time. Both WS and FIS are women who retired in 1997 and had lived together almost 19 years.
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SunshineH
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by jefr » Mon May 13, 2013 4:01 pm
Go Redwings!!!  WS 52 IS 57 Cholangiocarcinoma metastases to liver and hip bones. limited mobility.
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jefr
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by Kronberg » Mon May 13, 2013 4:28 pm
Go Wings!!! I'm with you, jefr.
Im okay with the Hawks too though.
Welcome. Please tell us more.
MS dx in '86 while expecting WC3; WC4 followed while in optimistic denial promoted by MS Society.
IS currently bed/wc bound; limited use of only one hand; self caths; still in denial enabled by cognitive decline.
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Kronberg
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by lindack » Tue May 21, 2013 6:59 pm
testing-if I can get the hang of this!
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lindack
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by LarryB » Tue May 21, 2013 8:14 pm
Welcome ((Lindack)) to the group no one WANTS to join! You'll find us a great understanding family. Introduce yourself in Help and Healing.
Larry
Be thankful the thornbushes have roses!
Deb and Larry 4-16-67 1-22-13
President Well Spouse Association - BECOME A SUPPORTING MEMBER so that we can serve others in need
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LarryB
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by EmilyK » Tue May 28, 2013 9:59 pm
Do others feel guilty for being healthy? Selfish for wanting a life?
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EmilyK
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by LarryB » Tue May 28, 2013 10:12 pm
Welcome (((Emily)))
ALL THE TIME!
But we get over it! It is not your fault your spouse is ill or that you are well. We give much of ourselves, many do this for decades (my wife was ill 17 years). The only way to stay sane is to put on your own oxygen mask first!
You need to do things for YOU - a walk, a trip, time with friends, as you say, a life (albeit it truncated)! Then you can be better at caring for your spouse too.
Glad you have found us. Please introduce yourself on help and healing, our most widely read forum.
Remember - NO GUILT!
Be thankful the thornbushes have roses!
Deb and Larry 4-16-67 1-22-13
President Well Spouse Association - BECOME A SUPPORTING MEMBER so that we can serve others in need
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LarryB
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by Kronberg » Tue May 28, 2013 10:30 pm
EmilyK wrote:Do others feel guilty for being healthy? Selfish for wanting a life?
Maybe when we first come here but we'll get you over it. You have nothing to feel guilty about and you deserve a life separate from your IS, just as you would if you were both healthy. I know it's not the same and not what we wanted but we do whatever we must to survive and carry on. Welcome to our family. Please tell us about yourself when you feel like it. Here are some hugs for now. I'm guessing you could use them. ((((((EmilyK)))))) MS dx in '86 while expecting WC3; WC4 followed while in optimistic denial promoted by MS Society.
IS currently bed/wc bound; limited use of only one hand; self caths; still in denial enabled by cognitive decline.
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Kronberg
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by SunshineH » Wed May 29, 2013 1:22 am
Welcome Emily. You are not alone in your guilt feelings. Come in and relax a while. (((hugs)))
FIS died 9/1/08. It was her CHF, COPD, and Atrial Fibrulation that hospitalized her the last time. Both WS and FIS are women who retired in 1997 and had lived together almost 19 years.
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SunshineH
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by Amanda15 » Sun Jun 09, 2013 10:59 pm
Testing ... I have read the boards some before but this is my first post....
WS caring for IS with TBI, vestibular disorder, CRPS/RSD and other chronic pain, migraines, fatigue, thyroid cancer, and POTS-like symptoms. We are in our 20s/30s and I am particularly interested in connecting with other young WSs.
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Amanda15
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by Alida » Sun Jun 09, 2013 11:12 pm
Welcome, ((((((Amanda))))). When you feel ready, do drop into Help and Healing  . WS 62, IS 62, 2 strokes '07, not severe, diabetes 2, retinopathy, dialysis, enlarged heart
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Alida
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by SunshineH » Mon Jun 10, 2013 2:27 am
Welcome Amanda!!!!
FIS died 9/1/08. It was her CHF, COPD, and Atrial Fibrulation that hospitalized her the last time. Both WS and FIS are women who retired in 1997 and had lived together almost 19 years.
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SunshineH
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