Hello from Gizzy

[Gizzy]

Hi everyone, its my first post on here but have had a nose round and read a few posts..thanks to Maureen60 for pointing me in this direction.

My hubby was diagnosed with an Oligodendroglioma II brain tumor in May 2008, he has had 90% of the tumor removed and 7 cycles of Chemo.. the Consultant wasnt able to remove all of it as its in a part of the brain he needs.. in the cognitive and language areas. The MRI scans were ok till the last one when it shows the Beeping tumor has started growing again. Unfortunatly it isnt curable and will kill him in the end..though I dont plan to let him go without a huge fight
Hubby has some cognitive and language issues but we are coping with them all.. he now has a daily sleep for about an hour and can at times be difficult to cope with...his local Dr and I managed to persuade him to go on to antidepressants which have helped him, if leaving him a bit flat emotion wise.

In the scheme of things I realise that the troubles we are having are minor compared to others on here but am just looking for advice and people who know how I am feeling and maybe some other Brain tumor carers.. Sharon x

[Dorothy Saunders]

Welcome, Gizzy. I am sorry that you need us, but glad that you've reached out to us.
Please, no comparing -- an incurable brain tumor is NOT minor! I lost my brother to a brain tumor 10 years ago.
Thanks for introducing yourself.

[LarryB]

(((Gizzy))) No IS problem is minor! If it affects your life (and this certainly qualifies) you ARE a Well Spouse.

Welcome, be at ease and at home.

Larry

[Gizzy]

Thanks both of you. I do have days when I want to strangle IS especially when he belittles the things that make me happy and destress..
Have just read your WS Bill of Rights and it does make me feel less guilty about doing things for me.

[maureen60]

YAY Gizzy!!!! You've joined up!!!!
Welcome, Welcome, Welcome!!!!
I too, found the WSA Bill of Rights empowering.
So glad you're here (altho, sorry for the reason that you had to join, of course).
Huge Hugs
xoxoxoxoxoxo

[donita]

Welcome Gizzy!!!! I am so sorry to hear about your IS's diagnosis. You will find that many of us deal with those cognative problems as side-effects of our IS's illness.

Please post often. You will find others who have walked that path and those of us who have not will also hold your hand.

[claudia]

A warm welcome, Gizzy. I'm glad you have been steered to us. This is a magical place where sharing and caring for each other mystically lifts our own burdens.

As I recall there are other WSes dealing with brain tumors and the consequences of the illness and the effects of treatment. All of us share and understand the fear, stress, fatigue, loneliness, loss of normal life and normal life pleasures, and the weight of responsibility that define the WS life. We understand in ways that even our family or best friends can't. And, we are always here for each other and for you.

A big welcome hug,
Claudia

[qtrhrsemom]

Welcome to the family Gizzy!! I'm so glad you found us!!

[4strnkth]

Welcome Gizzy...cool name! WS has saved me from the depths of depression the past months and I cant thank them enough! I've even had board members call my house out of concern for me. I find the chat room helpful and fun but the forums keep me grounded the most. I post regularly like a journal; but it always amazes me that someone always posts back and has advice, kind words, VALIDATION, and just a listening ear!

[wheeliezdryver73]

{{{{{{{{{{Gizzy}}}}}}}}}}}

Glad you found us!!! I look forward to seeing you around here! Let us know if there's ever any way we can support you!

[SCIwife]

Welcome Gizzy!

[Katt]

Hey Gizzy, welcome to the hood. The gang no one really wants to be part of, but glad for the companionship.

Love the handle....easy to type and not too long. (I'm known to shorten longer ones )

Sorry to hear that your IS' tumor is growing again, but you sound like a fighter. Personally, they gave my FIS less than 2 years and we managed for 13 years.

Welcome again...jump on in and get your feet wet.

Kat

[Gizzy]

Thank you everyone for your welcome..yes I made it Maureen, thanks again.
Glad you like the name its the name of my last hamster
Glad to hear you news Katt, the average life expectancy they have given my IS is 7 years but we plan to beat that by a long way. Feel free to shorten my name too.. have been called Giz before now

[DaveZ]

Welcome Gizzy. My IS also has brain tumor, along with bone cancer. Memory loss and confusion are the norm in our lives. One day at a time as we wait for the end to come. You'll find lots of support here. Good ideas and most important a place to vent, when you really need to.

[Gizzy]

So sorry to hear about your IS it must be so hard for you both.
My IS isnt too bad at the moment but I can see his personality slowly changing and even now he isnt the person I married 17 years ago.