Let me introduce myself........

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Let me introduce myself........

Postby crettman1 » Thu Oct 20, 2011 3:40 am

First time posting to this website. It's nice to know there are others who face some of the same challenges and are not afraid to talk about them. We are two years into a massive stroke leaving my 59 yr. old husband with paralysis of right side, aphasia, and significant cognitive and emotional levels diminished. He is doing well but quality of life is not what I would want for him. Our present house is not wheelchair friendly and there is no way for him to get back inside by himself if he wants to get fresh air. Eventually we may move into the city and closer to places he may enjoy going. The motorized scooters in the grocery stores have been a huge advantage. He likes them and enjoys the independence of zooming around alone. (Sometimes a little too much!) I am looking forward to meeting you all and chatting as much as possible. If you see me online, please say hello! THANKS!
As you slide down the banister of life may the splinters never point the wrong way...Be who you are and say what you feel because those that matter don't mind and those that mind don't matter.
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Re: Let me introduce myself........

Postby Dorothy Saunders » Thu Oct 20, 2011 7:24 am

Welcome to our safe haven, crettman! As we say, we're sorry that you need us but glad that you found us.
I know OK is a big state, but forum member Dizzy lives there and maybe you two can meet for lunch and have live, in person support.
Caregiver for 30+ years to C-4 quadriplegic shot during a robbery at age 21. He practices law full time; we have two 20-something sons.
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Re: Let me introduce myself........

Postby secretflower » Thu Oct 20, 2011 7:50 am

Hi Crettman1,

Welcome :)
I am glad your found us, but as they say "sorry you need us".....my IS also had a stroke with similar losses.....unfortunately he cannot negotiate his powerchair himself....has a tendancy to crash into things....motorskill & vision field cut.....he was always quite the wheel man, so imagine his frustration with me being the designated van & chair driver :roll: .....that being said, I can do a mean pirouette as I navigate with the joy stick through crowds :lol: ........

I look forward to getting to know you. This group has been wonderfully inclusive to me & I am sure you will find it the same.
IS-a massive stroke-6/07-hemiplegia rt.side, aphasia, diabetes, etc.-5 yrs.24/7 home care-now my darling is in NH...
Cheerio,Secretflower ~/>
Life is mainly froth & bubble-2 things stand as stone-kindness in another's trouble-courage in your own
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Re: Let me introduce myself........

Postby myonly » Thu Oct 20, 2011 8:31 am

Welcome, crettman! Hope you find a lot of support, information, and "Yes!" moments as you look through the threads.

It is good to hear that you're maximizing your husband's independence, sorry to hear that there are still roadblocks. Our house, too, is not fully accessible, so I can identify with your challenges.

Hope you find a welcoming home here.
WS (43) caring for IS (48) with secondary progressive multiple sclerosis. Momma to four boys, ages 8 to 19.
IS transitioned to long-term care facility 3/15/13.
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Re: Let me introduce myself........

Postby kitty » Thu Oct 20, 2011 8:59 am

Welcome crettman1! hope you are able to find some comfort and friendship here at WSA - It's been a life saver for me ( :
IS Dx MS 1990 - stroke 2007- triplegic - spcatheter - eyesight problems - limited use of rht hand, some cognitive deficit

“You don't have a soul. You ARE a soul.
You have a body.”
― C. S. Lewis
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Re: Let me introduce myself........

Postby LarryB » Thu Oct 20, 2011 10:31 am

(((crettman1)))

If you are anywhere near OK City contact Dizzy - he has started a support group there, he is an ex SG Leader from CT

Glad you found us - post often!
Be thankful the thornbushes have roses!

Deb and Larry 4-16-67 1-22-13

President Well Spouse Association - BECOME A SUPPORTING MEMBER so that we can serve others in need
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Re: Let me introduce myself........

Postby qtrhrsemom » Thu Oct 20, 2011 1:07 pm

Welcome to the family, crettman1!!! Stop by often!!
WS (59) to IS (67) Separated. Parapelegic from injuries suffered in Viet Nam in 1967. PTSD, Chronic pain... too many surgeries to mention.
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Re: Let me introduce myself........

Postby wheeliezdryver73 » Thu Oct 20, 2011 1:43 pm

welcome to the group!!! feel free to come here any time!
Becky- WS: 35, multiple autoimmune issues, incl. hypothyroidism & gluten intolerance IS: 37, born w/ Spastic CP- legally blind & uses wheelchair; C7 vertebrae fused Aug 2007, cont'd back problems; Married since June 1998.
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Re: Let me introduce myself........

Postby donita » Thu Oct 20, 2011 2:11 pm

It is a pleasure to meet you, crettman. I wish it were under better circumstances.

Welcome to the WS family!
Donita

FIS with inoperable lung cancer in remission over 7 years, COPD, on oxygen 24/7--14 years, 2 kinds of sleep apnea, spinal fusion--His struggle ended 10/21/2011
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Re: Let me introduce myself........

Postby SCIwife » Thu Oct 20, 2011 2:37 pm

Welcome!
WS 55 IS 48 C3 Spinal Cord Injury 2008 fall from apple tree. Paralyzed below neck with trach. Many respiratory and some cognitive issues. Diabetes Type 1.
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Re: Let me introduce myself........

Postby maureen60 » Thu Oct 20, 2011 2:55 pm

Hello Crettman!
I have found this site and the wonderful people here to be a lifesaver. I hope that you do too. So nice to meet you.

Maureen xxx
I am a FWS. My FIS had bowel cancer with 25 metastasized tumours in both his lungs, but they were slow growing and not blocking any airways. He was first diagnosed in 2006, and died in June 2012.
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Re: Let me introduce myself........

Postby jacknsue » Thu Oct 20, 2011 11:11 pm

Hello Crettman

My situation is somewhat similar to yours. I wanted to chime in and offer some suggestions and encouragement.

My wife suffered a massive stroke in June 2002, almost ten years ago. Susan was 58. Her stroke affected her left side, so she does not have aphasia. However, we have been going to the same stoke support group for years and I can report that our friends with aphasia continue to improve every year; the improvement never stops.

If your husband can drive a scooter, then he has about the same capabilities as Susan. I suggest that you consider getting him into therapeutic horseback riding. Riding is Susan's favorite hour of the week. The therapeutic riding places have all of the lifts and the skills to deal with your husband on a horse. I Googled "therapeutic riding Oklahoma" and found this link.

http://www.ohorse.com/stables/therapeut ... /oklahoma/

There are five therapeutic riding stables in Oklahoma.

I also recommend that you Google adaptive and then whatever sport might interest your husband. Susan was not athletic at all in her former life, but she has enjoyed adaptive kayaking, waterskiing, and canoeing.

All of these activities are appropriate for someone who needs a wheelchair, but can do a pivot transfer with moderate assistance.

These activities are either free or very inexpensive. The adaptive water sports only occur one day per year where we are, but they are worth waiting for.

Finally, at least in Susan's case, she has never stopped improving. She still needs 24/7 supervision, and she can only walk with a quad cane for very short distances. Otherwise she is in a wheelchair or a scooter.

Still, we have learned to have a life that is much, much more than just TV and doctor visits.

I'm in a hurry right now. We're just a few days from changing locations for the winter. Still, I wanted to chime in with some optimism. I hope we can get to know each other a little better in the coming weeks and months.

Jack
WS 68 y/o male. IS stroke in 02. Profound paralysis, seizures, can't be left alone, mentally 95% ok. In addition to bathing, dressing, housekeeping, etc, my job is keeping wife entertained with a full life. High school sweethearts, married 46 years.
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Re: Let me introduce myself........

Postby Noelle » Thu Oct 20, 2011 11:29 pm

Welcome, Crettman, to the club nobody wanted to join. I'm sorry to read about what you're going through. Your sense of humor will stand you in good stead. How do I know? Your signature is a kick.
FWS. In memory of John, an adventurer whose passions included wooden sailboats, animals, anything green, and music -- especially Rhapsody in Blue. Rest in peace, December 31, 2009.
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Re: Let me introduce myself........

Postby graybeard » Fri Oct 21, 2011 8:48 am

Welcome Crettman,

As many say here, glad you found this community, and sympathy that you have found yourself in these circumstances.

Over the past three years, I have found this to be a strong, supportive, caring, and understanding place - occupied by the best people I have come to know in my many years.

Grab a cup or glass of the beverage choice, pull up a chair, and sit with us for a while.

GB
Together 35 years, the early ones uncomplicated. Now, on a journey unanticipated. No map, indeed no clear destination, just finding our way.
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Re: Let me introduce myself........

Postby tundra lodger » Mon Oct 24, 2011 10:55 am

Welcome Crettman :D

Although I'm sad you've need of this place, I'm glad you found our little online haven for WellSpouses in need. May you find the support, friendship, and understanding you seek among us.

You'll feel right 'at home' very soon.

tl
IS disabled with chronic intractable pain of degenerative spinal issues resulting from fall in '96, fibromyalgia, obstructive/central sleep apnea, diabetes, chronic lymphocytic leukemia. Seeking serenity with no drama and no trauma.
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