What caregiver demographic does WSA represent?
*Includes paid, supporting members and non-supporting, one-year members on the WSA Online Forum, as well as about 2.5% who do not have emails or computer access.
Where do the members of WSA reside?
What are the diseases, illnesses, and disabilities represented by the spouses or partners of WSA members? (in order of prevalence)
AARP Policy Institute Report: Valuing the Invaluable: 2011 Update: The Growing Contributions and Costs of Family Caregiving
Main findings: In 2009, about 42.1 million family caregivers in the U.S. provided care to an adult with limitations in daily activities at any given point in time, and about 61.6 million provided care at some time during the year. The estimated economic value of their unpaid contributions was approximately $450 billion in 2009, up from an estimated $375 billion in 2007.
Ages of spousal caregivers in the U.S.: The most recent source of family caregiving statistics, the 2009 Caregiving in the U.S. study carried out by the National Alliance for Caregiving (NAC) and the American Association for Retired Persons (AARP) and funded by Met Life Insurance Co. shows that of all family caregivers (65.7 million) those caring for a spouse or partner the age-range distribution of the spousal caregiver is:
18-49 - 1% ; 50-64 - 4% ; 65+ - 24% . A total of 5%, or nearly 3.5 million of all family caregivers are spousal caregivers.
Full report, from the National Alliance for Caregiving: Caregiving in the U.S. -- 2009 Click here
General Page for NAC statistics on caregiving: Click here
Look on the left sidebar for specific surveys, including:
Family Caregivers Face Major Financial Burdens, Increased Stress, and Work Struggles -- 2011 online study from Caregiver.com
74 percent of caregivers have either had to change their job situation or are not working. These results, coupled with the findings that 42 percent are spending more than $5,000 a year on caring and over 60 percent are concerned about the impact that providing care is having on their savings, clearly demonstrate that the financial toll of caregiving is a major issue for the millions of Americans who care for their loved ones.
Caregiving also results in measurable emotional costs. The survey indicates that caring for a loved one is the number-one source of stress among respondents (69 percent), ahead of the downturn in the economy and other family medical problems. In terms of family relationships, more than a quarter said their relationships had been negatively impacted by providing care. However, 75 percent say their caregiver role is a source of pride because they're making a difference for their loved one.
Caring.Com: Emotional and Financial Costs of Caregiving 2011 (InfoGraphic) Click here.
Spousal Caregiver Studies
Susan C. Reinhard iof the AARP Public Policy Institute, and Carol Levine and Sarah Samis of the United Hospital Fund prepared this 2014 report:
* Includes special offer for spousal caregivers of wounded warriors.
Mission: The Well Spouse® Association is a non-profit 501(c)(3) organization offering peer emotional support to husbands, wives or partners of people with _any_ chronic illness or long-term disability.
*Special free one-year supporting memberships (a $30 value) are available for military spousal caregivers, courtesy of the WSA.
International memberships (US$35) and Support Groups for those living in other countries such as Canada are also encouraged.
To request rack cards for distribution:
Call 1-800-838-0879, or
Write to: Well Spouse® Association, 63 West Main St. Suite H, Freehold, NJ 07728 USA